Rare & genetic diseases · Area

Rare & genetic diseases guides,lifelong care, in plain language.

Plain-language guides for rare and genetic conditions — surveillance, genetic testing, and coordinated care from the basics up to clinical detail, with recruiting trials one step away.

Genetic syndromes1 guide
In review

Von Hippel–Lindau disease

A rare inherited condition that can cause tumors and cysts across several organs over a lifetime. Coordinated, lifelong surveillance and genetic counseling are the cornerstones of care.

Plain → clinicalOpen guide
Von Hippel–Lindau disease

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